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Our Tiny Miracle - Kaylee June

Let me tell you about a little girl who has stolen our hearts, but almost never came to be.
After three natural pregnancy losses and two rounds of IVF (in-vitro fertilization), we started our third round of IVF in the summer of 2018. Two of our pregnancy losses were due to chromosome issues so we did PGS (Pre-implantation Genetic Screening – checking the chromosomes of embryos for abnormalities) testing for our first two rounds of IVF. All (4) of those embryos were deemed “abnormal”… they either had an extra chromosome or they were missing one. And they were all issues that were not compatible with life. So going into round 3 we were looking for a “fresh start”. To our surprise, our doctor (who is amazing at thinking “outside of the box”) suggested we forgo the PGS testing for our 3rd round. Each of our chromosome abnormalities, including two of the pregnancy losses, were all different abnormalities (it was a different chromosome missing or extra each time). So he thought it wasn’t …
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One Month Liver-versary

Today marks one month since Reid was wheeled into the Operating Room for his liver transplant. One month since our lives changed forever. That was the best day, but I’ll be honest – it was also the hardest day of my life. I don’t think we were fully prepared for the emotions that would surround that day. And it’s just now catching up to us that this happened. One month ago he received the ultimate gift. He received the gift of life. The gift of not living with his disease, Primary Sclerosing Cholangitis, and all of the symptoms that came with it. The gift of not having to worry every day that cancer was taking over his liver. The gift of looking forward to watching his babies be born, and not having to worry how long he’d be around to raise them. The gift of no longer wondering whether he would ever get the liver transplant he needed. An absolutely priceless gift.
I don’t even know that I can properly vocalize the emotions we felt in the 33 hours leading up to him being taken back fo…

Our Current Situation

It’s been quite a while since I’ve given a general update on us. If you’ve been following our Facebook or Instagram pages, then you know that our final embryo transfer took and we are pregnant with twins! We are thrilled, and so far everything has looked great as we are a little over 17 weeks today.
While we are so grateful for the two miracles growing inside of me, I would be lying if I said we don’t have some added stress. And I’m not just talking about the regular stress of having a baby, or the extra stress of having two at once. There’s always this looming question of “what will happen with Reid’s health?” Over the last several weeks that stress has intensified as we get closer to “crunch time”.
Last week we went to Reid’s 3-month check in with the Houston transplant team. As I sat in the waiting room and took my typical picture of my “expect miracles” shirt, I saw my bump. And the reality hit me even harder, that we are bringing twins into this world and my husband is still fi…

PSC Awareness Day: Reid's Story

In June of 2014, just three months after we were married, Reid was diagnosed with Primary Sclerosing Cholangitis (PSC). 

His doctor explained that PSC is an auto-immune condition in which the bile ducts in his liver were very scarred, and could eventually lead to a liver transplant (the only treatment for this disease) or cancer in the bile ducts (cholangiocarcinoma), which is very deadly. There is no cure for PSC, and it would be a waiting game to see how it would affect his body. There was no "typical" timeline as the disease affects everyone differently.

At the time, we weren't exactly sure what to expect. I remember we went to breakfast after that doctor's appointment, to discuss what we learned and process it. To be totally honest, Reid was quite upset. He saw it as a death certificate (which is completely opposite of his usually optimistic attitude). I was of the mindset that it was all a MAYBE. Maybe he would need a liver transplant. Maybe he would develop cance…

The Story of our First Potential Living Donor

I am so excited to share the story of our first potential living donor with you. The conversations with this guy, and the selflessness of his offer, have touched our hearts in so many ways.
In January of this year, I woke up to a Facebook message from a high school friend, Desmond Parker. And I laid in bed crying as I read it. He couldn’t sleep the night before and decided to re-activate his Facebook account. The first thing he saw in his timeline was a blog post that I’d written with an update on Reid’s health. And something in him said “I need to help”. He spent the next hour or so researching living donor transplants before messaging me, and he “couldn’t find a reason why NOT to do it.” His message said that he wanted to be tested to see if he was a match for my husband.
Y’all, I hadn’t talked to this guy in several years. He had never met my husband. He felt no obligation to us other than we had a need, and he wanted to help (cue the tears). Dez checked all of the boxes on pape…

Our "secret" Frozen Embryo Transfer

So, we did this thing. Almost two weeks ago we went in for a “secret” embryo transfer. We thought, “how cool would it be if we could surprise our friends and family with good news?!” so we didn’t share publicly about this transfer. Although, if I’m being completely honest, that wasn’t the only reason we didn’t share. I was also trying to protect our hearts, and keep us all focused on Reid’s transplant journey.
On August 1st, we transferred one of our day-6 “good fair fair” embryos. We had weeks of prep leading up to the transfer, which included oral estrogen and a new nightly injection of progesterone in oil (PIO). We remained “cautiously optimistic.” And until this past Monday, I really believed that it had worked and we were pregnant. All of my hormone levels had been right in range and my progesterone was higher than it had ever been before. This was it. But it wasn’t.
Our official “beta” (blood test to confirm pregnancy) wasn’t set until Wednesday, the 15th (today, if you’re read…

The Continued Fight for a Liver

Hi, friends. Okay, my head has stopped spinning (a little) since our trips to Cleveland and Alabama. And we have a plan (ha – that’s funny). I should say we have some ideas of potential plans (which have already changed since I started typing this). But you all know how our “planning” has gone so far. So we’ll throw some ideas out there and hope something sticks.
Both trips were very productive. But also exhausting. Sitting in hospitals waiting and trying to make sure you ask all of your questions and absorbing all of the information is hard work! The last day of our travels, I felt the same as I do after a big move or event. You spend all this time planning, and then it comes and you are left processing your thoughts and figuring out how happy you are with the outcome. I have spent the last two months researching and talking to so many transplant centers and doctors and nurses, and working to get medical records sent where they need to go. All of that led up to the last two weeks. …